A new AI-PROGNOSIS publication is now available in JMIR Publications’ journal JMIR AI: “A Qualitative Exploration of Ethical Aspects of Using AI in Parkinson Disease: Patient Panel Study”.

The study explores ethical considerations of artificial intelligence in Parkinson disease management from the perspective of people with Parkinson disease.

The research is based on qualitative data collected within the AI-PROGNOSIS project through 13 interviews and 2 focus groups with an international patient panel of expert-by-experience people with Parkinson disease from six European countries.

Participants discussed how AI could support personalized, actionable insights for people with Parkinson disease and their health care professionals. They also raised concerns around patient involvement, model accuracy, privacy, ethical injustices, and psychological impact.

The findings show that risk prediction, prognosis, and medication response were viewed differently in terms of potential value and ethical considerations, with risk prediction perceived as the most ethically complex.

The paper highlights the importance of AI integrations that prioritize individual needs, actively engage people with Parkinson disease in the development, implementation, and interpretation of predictive AI, and establish guidelines to support health care professionals and minimize patient harm.

The publication is available here: https://ai.jmir.org/2026/1/e74144