A recent article published by Being Patient features AI-PROGNOSIS researcher Sara Riggare (Uppsala University) and her work on self-tracking, self-care and the use of artificial intelligence by people living with Parkinson’s disease.

The article, “What a Parkinson’s Researcher Learned From Tracking Her Own Disease,” explores Riggare’s experience of living with Parkinson’s and her research into how people with the condition engage with AI and digital technologies.

Among the research highlighted is a recent study involving 149 people with Parkinson’s across 19 countries. The study found that 65% of respondents had used generative AI, while 40% of those users had used it in relation to Parkinson’s disease. The research identified three main types of use: seeking information, interpreting health-related information, and preparing information ahead of healthcare consultations.

The study, published in the Journal of Parkinson’s Disease, was supported by the AI-PROGNOSIS project.

The Being Patient article also highlighted the AI-PROGNOSIS-related webinar “Parkinson’s Disease and Artificial Intelligence – What Does AI Mean for Us Living with Parkinson’s?”, held on 26 August 2026. The webinar explored how AI is being applied in Parkinson’s research, disease monitoring and future treatment development.

🔗 Read the Being Patient article: What a Parkinson’s Researcher Learned From Tracking Her Own Disease

🔗 Read the research article: “ChatGPT knows my Parkinson's”: Perspectives of people with Parkinson's disease on use of generative AI