Co-Creation Process at AI-PROGNOSIS

Co-creation process is at the heart of AI-PROGNOSIS, ensuring that every tool we develop is grounded in the real-world experiences of those affected by Parkinson’s disease (PD). We collaborate closely with a diverse group of stakeholders, including clinical experts, patient advocacy groups, individuals living with PD, and technical specialists in AI and digital health. Through strategic workshops and focus groups, we have gained critical insights - from personalised risk assessments to the importance of data visualisation for healthcare professionals. These findings are directly shaping the system requirements and product backlog, ensuring that our tools are both effective and user-friendly.

Key Findings from User Research and Co-Creation

To date, several significant milestones have been achieved:

• Three rounds of strategic co-creation workshops have been conducted using an agile methodology, engaging persons with PD (PwP), technical partners (Aristotle University of Thessaloniki, Ainigma Technologies), the bioethics partner (The University of Oxford), and facilitation by Uppsala University.

• Two focus groups, specifically with the patient panel, have been completed, focusing on identifying and prioritising user needs related to mAI-Health and mAI-Care tools.

• One co-creation session with Parkinson's disease patient representatives focused on refining the active motor tests component for integration into the AI-PROGNOSIS app.

  
  

Insights from Recent User Research Initiatives

Our recent user research initiatives have provided critical insights:

• Patient Panel Focus Groups identified preferences for personalised risk assessment and desire for gamification elements.

• Healthcare Professionals (HCP) Interviews highlighted the importance of data visualisation and usability in clinical decision-making.

• AI Co-Creation Workshops revealed patients with Parkinson's (PwP’s) cautious optimism towards AI tools, emphasising the need for transparency and educational content.

  
  

The user needs identified through these sessions have been instrumental in defining our system requirements, subsequently guiding the ongoing development of our product backlog.