On 25 November 2025, Uppsala University (UU) organised the webinar “Parkinson’s Disease and Artificial Intelligence – What Does AI Mean for Those of Us Living with Parkinson’s?”.

Key points covered by the webinar:

The webinar focused on living with PD and how AI can help. The project was presented as a good example of how AI in PD can be realized and as an ongoing project.

Key comments from the attendees and how it will be incorporated into the project:

Before the webinar, we asked the participants if they had any specific questions they would like us to focus on. These were the suggestions:

• Will it be possible to predict how fast the disease will progress in a given individual?

• Will AI be able to provide alternative ways to communicate when you have tremor and cannot e.g. dial a number?

• Does AI exist today that, for example, with speech-to-text learns and adapts based on how you personally speak—your words, names, etc.? Likewise, to control a computer or mobile device with voice, or alternatively with eye tracking? It takes an enormous amount of energy and time to write and constantly correct all the misspellings; these things would be so helpful.

• What is the current state of research when it comes to detecting the risk of developing Parkinson’s and developing medications that can slow the progression of the disease for healthy individuals in the risk zone, up until Parkinson’s manifests in a person? It should be of great interest to prevent the onset of Parkinson’s before it’s too late.

• Can AI be helpful for memory? Both for training memory, but also as a reminder?

• I’m thinking that AI could both automate and compile large registries to gain deeper insights into the disease. We hear from leading researchers that there may be 10–15 variants of Parkinson’s disease, and in that case, these could be identified and defined more clearly in a mapping effort to enable better precision medicine.

During the webinar, we asked a poll-question: What do you think of AI for Parkinson? The answers:

• Good – 69%

• Promising, but not there yet – 15%

• Bad – 0%

• Do not know – 13%

• Other – 3%

This will give us a further understanding of the needs for PwP in regard to AI.

125 PwP had signed up for the webinar and have received the recording and presentation from the webinar. 55 participants attended the actual webinar.

The webinar was held in Swedish. While most slides were in Swedish, a few slides presenting the project were in English and were translated orally during the session.